A new plan by Gov. Gavin Newsom, who struggled with dyslexia as a child, would pay for more screenings and services for the thousands of California students with dyslexia — a condition that advocates say has not received enough attention in schools.
The California Dyslexia Initiative, which the governor announced last week as part of his 2020-21 budget proposal, would set aside $4 million for screening, professional learning for teachers, research and a conference on dyslexia, a learning disorder that affects one’s ability to read and write. Although the amount is small compared to the overall education budget, it lays the groundwork for future investment and brings much-needed attention to the issue, advocates said.
“This is a very big deal. It’s fantastic news,” said Megan Potente, co-educator outreach manager for Decoding Dyslexia California, an advocacy group that lobbies for better dyslexia services in schools. “Gov. Newsom is bringing more attention to dyslexia than we have seen in decades.”
Dyslexia is a genetic brain condition that ranges from mild to severe, and affects all racial and ethnic groups. Children with dyslexia have difficulty learning to read and write, and often fall behind academically even though the condition has nothing to do with intelligence, according to the International Dyslexia Association. Although there’s no cure, dyslexia can be overcome by learning alternate ways to read. About 20 percent of the population has some degree of dyslexia, often undiagnosed, according to the International Dyslexia Association.
When dyslexia is not addressed, students can become disengaged with school, develop behavior problems and are more likely to drop out. About half of inmates in U.S. prisons have serious difficulty reading, in many cases due to dyslexia, according to a 2014 study by the U.S. Department of Education.
But if identified early, children with dyslexia can learn alternative ways to read. Reading might always be a struggle, but they can keep up with their classmates and even excel, said Kathy Futterman, an education lecturer at Cal State East Bay who sat on the state’s dyslexia guidelines committee.
“The earlier you can intervene, the better chance you have at closing the gap,” she said.
Currently, few schools in California routinely test students for dyslexia, said Pamela Cohen, a parent in Los Angeles Unified who’s a longtime advocate for better screening and support for dyslexic children. Whether a dyslexic student receives services at school depends on whether their teacher notices the condition, a school psychologist assesses it and a tutor or teacher provides services to help the student overcome the disability. Most schools lack the resources to identify, diagnose and provide services for all students who need it, Cohen said.
The result is that more affluent parents pay for private screening and tutoring, which can cost between $50 and $200 an hour, while lower-income families might not even know their child has dyslexia at all.
“It’s a civil rights issue,” Cohen said. “I might be able to dig into my pockets for years of tutoring, but what about the thousands of kids whose parents don’t have the resources?”
Newsom has often spoken of his own struggles with dyslexia, which he was diagnosed with at age 5 but didn’t learn he had until later in elementary school, he said. He struggled with reading and writing throughout school but eventually managed to thrive academically by finding other ways to absorb information, such as memorization and diligent note-taking. As lieutenant governor and now governor, he’s strongly advocated for special education, especially programs aimed at helping students with learning disabilities.
“I’m passionate about special ed. I think most of you know that because I was one of them growing up,” he said during his budget announcement in January. “It’s a miracle that I’m here. As someone who struggled with speech and someone that struggled academically, I had remarkable people that intervened. And (because of them) I’m standing at this podium.”
The California Dyslexia Initiative would be run through a county office of education, which in turn would hire a university to research the best screening and teaching methods for children with dyslexia. The county office would also create partnerships with districts and charter schools throughout the state, and host a statewide conference for educators and researchers.
Funds would also be set aside for teachers’ professional learning, technical assistance for districts and stipends for teachers to attend the conference. The state would select the county office to run the program by September, and the conference would be held by January 2021.
The initiative is the latest in a string of recent state and private investments in addressing dyslexia, including three new research centers at the University of California.
At UCLA, the Center for Dyslexia, Diverse Learners and Social Justice will study the links between literacy and equity among children who have access to tutoring and those who don’t. The UC San Francisco Dyslexia Center focuses on neuroscience research and works directly with teachers and schools. Financier Charles Schwab, who was diagnosed with dyslexia at age 40, in September donated $20 million to establish a joint dyslexia research project at UCSF and UC Berkeley.
At the K-12 level, the U.S. Department of Education in September awarded California a $37.5 million grant for literacy programs, which advocates are lobbying the state to use to benefit students with dyslexia. And in 2017, the California Department of Education adopted California Dyslexia Guidelines, a 136-page detailed outline on the best way for schools to help students with dyslexia. The guidelines are not mandatory, though, so implementation is up to each school.
And last year, Newsom’s budget included $3.5 million for an early intervention dyslexia pilot program at UC San Francisco.
Advocates have been pushing for years to screen all kindergartners for dyslexia and provide tutoring if needed, Futterman said. They’ve also been pushing for schools to teach reading in a way that’s easier for students with dyslexia to grasp, with a focus on sounds rather than whole words.
Identifying and helping students early can save money in the long run, because those students could avoid referrals to special education and ultimately do better in school, said Nancy Redding, a learning disability specialist who’s on the advisory board of the International Dyslexia Association of Northern California. Currently, about 37 percent of students in special education in California have a learning disability, usually dyslexia, according to the California Department of Education.
“Early screening and effective teaching methods — which are helpful for all students, including English learners — can drop our special education caseloads dramatically,” Redding said. “In the long run, the state will save money.”
Redding said the most promising part of Newsom’s initiative is the emphasis on professional learning for teachers, both for existing teachers and those in credential programs. Despite the surge in research, very little has changed in the way teachers address dyslexia on a day-to-day basis, Potente and others said.
“Teachers want to help,” Redding said. “They see students in their classrooms every year who are not learning to read and write as they should, but teachers have not been trained in recognizing the signs and symptoms of dyslexia.”
The initiative might not change dyslexia services in California overnight, but Newsom deserves credit for bringing attention to the issue and devoting funds to students with learning disabilities, who’ve long been ignored in public schools, she said.
“This initiative by Gov. Newsom will only make the outlook brighter for the many thousands of students in California public schools who have dyslexia and just want to be taught in a way that works for them,” Redding said.
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Gail A Hirn 12 months ago12 months ago
My six-year old grandson with dyslexia and ADHD has an IEP with the San Diego School District. Would there be any advantage to him being assessed by UCSF Dyslexia Center?
Walter Nixon 1 year ago1 year ago
Great article! I look forward to updates you will be writing.
Todd Blackmoore 3 years ago3 years ago
Can anyone share with me where we are at now with these proposed actions? Does the state of CA have an approved curricula and/or list of tools and resources for use with students in our schools? Is the January California Dyslexia Initiative conference that was referenced still scheduled to take place?
Sonja Elsey 3 years ago3 years ago
Well, at first glance this sounds all wonderful and encouraging for parents of dyslexic students. However, there are a few points that might be made. First of all, California has a dyslexia law in place - not that it does much good but it is there. Teachers wanting to help is doubtful. Most of them do not have the training it takes to recognize the signs or symptoms exhibited by students, … Read More
Well, at first glance this sounds all wonderful and encouraging for parents of dyslexic students. However, there are a few points that might be made.
First of all, California has a dyslexia law in place – not that it does much good but it is there. Teachers wanting to help is doubtful. Most of them do not have the training it takes to recognize the signs or symptoms exhibited by students, and there are those who do have this training and still ignore the issue.
Then there are those who do not believe in dyslexia or ADHD – and ignore the whole thing. Parents are not being made aware of available services provided by their districts although even if the services are technically in place, this does not ensure the student will get testing or help. Resource specialists are another matter entirely. There might be some excellent ones out there but there are some who address anything and everything but a child’s IEP and therefore does absolutely no good whatsoever.
Then we have the IEP and other resource personnel who totally disregard goals that should be in place for the student for some other and possibly less taxing activity on the teachers part. Getting an outside diagnosis might not do much for an IEP either because some individuals seem to think that unless they, themselves suspected or identified a problem that needs attention, they are absolved from taking up the load and working on the student’s specific issue.
According to several sources and what is posted on LAUSD website, 1 in 5 kids has dyslexia. According to LAUSD they have a program in place but no one knows about it. A 40 minute video is not going to do much. Testing is all fine and dandy but unless you have some real trained persons available to actually help the students, then it will be far too long before anything really gets done.
Veronica Salas 3 years ago3 years ago
Dyslexia doesn’t just affect a kid’s ability to read, it affects math as well. Math does require students to answer word problems. So if reading is affected, then their math is as well. When Californias ready to stop being afraid, to diagnose and properly educate a student with dyslexia, only then the students won’t be left behind.
Tina Birungi 3 years ago3 years ago
Thank you for this great and thoughtful effort, Governor Newsom. I wonder if there is any plan in place for unemployed underprivileged adults currently challenged with dyslexia, before they become homeless or incarcerated. I am currently housing a homeless man who I have tried so hard to help drive his artistic career to an extent where he can be employable, without much luck! The few places that could offer him employment in the past were … Read More
Thank you for this great and thoughtful effort, Governor Newsom. I wonder if there is any plan in place for unemployed underprivileged adults currently challenged with dyslexia, before they become homeless or incarcerated.
I am currently housing a homeless man who I have tried so hard to help drive his artistic career to an extent where he can be employable, without much luck! The few places that could offer him employment in the past were car dealerships (sales) which as soon as they found out that he could not get the potential clients’ paperwork processed correctly, they would lay him off. He has tried to work in warehouses, security, driving, delivery companies, uber/lyft or the likes of Door Dash but when you can’t read or write well, how do you deliver a package to the right address in a timely manner? How do you not miss your “exit” while driving? How do you avoid getting towed or parking tickets when you can’t read the parking signs correctly? How do you remember to clock in/out at work or pick up someone’s children from school on time when your mind can’t register what time it is? What do you do when your insecurities from being bullied in school for being unable to read or write later on lead to a failed marriage because you can’t keep a job and eventual loss of your children because you can’t afford a lawyer and you can’t read the legal documents so you blindly sign them, leads to homelessness and how do you fight on when depression kicks in?
I have watched this man struggle and it’s very frustrating and painful! Note, he is a very talented graphic artist and a fluent creative marketing guru so when he speaks, he is smart and knowledgeable because he makes an effort to learn from youtube videos and audio material so when he speaks, you would never guess he can’t read or write but who will hire him when he can’t even complete a job application?
How does he keep a job when the inner voice from his low self-esteem tells him it won’t be long before everyone finds out he can’t read or write and then get laid off? I have watched his spirit crash for the past 15 months and I feel hopeless that I can’t help, either!
Time is running out as I can’t afford to house him forever and yet can’t watch a fellow human being go on the streets especially in these challenging times of Covid-19. I am a single mom and we are currently a family of 6 as I am temporarily housing a few others too. I really want to help this talented man but I am stuck! Does anyone out there know of any organizations willing to hire dyslexic people?
Governor Newsom, this man is a very creative graphic designer and can build out your marketing campaign plan overnight and/or even if he was given an opportunity to be your adult intern, it would build him up in one way or another, I don’t know, I am just crying out for help. If anyone knows any resources out there that can help adults with dyslexic, please share. I have ran out of ideas!!! Thank you!
Dr. Bill Conrad 3 years ago3 years ago
It is admirable that Governor Newsom advocates for the improvement and treatment of dyslexia within our schools. We also need to transform the way that overall reading instruction occurs within our schools. The governor should fund a transformation in how reading instruction is taught to prospective teacher candidates in the woeful colleges of education. We need to ensure that teachers have a deep foundation in the five essential elements of reading including phonemic awareness, … Read More
It is admirable that Governor Newsom advocates for the improvement and treatment of dyslexia within our schools.
We also need to transform the way that overall reading instruction occurs within our schools. The governor should fund a transformation in how reading instruction is taught to prospective teacher candidates in the woeful colleges of education. We need to ensure that teachers have a deep foundation in the five essential elements of reading including phonemic awareness, phonics, fluency, comprehension, and vocabulary. Teachers should also be trained in teaching these 5 essential elements as well as how to assess for these elements and intervene to support students who are not on track for learning these elements.
We need to jettison the zombie idea of “Balanced Reading” that incorporates a failed theory of action that reading is acquired in the same way that oral language is acquired. Instead, we need to adopt the scientific approach to learning reading through explicitly teaching and assessing for the 5 key elements of reading advocated by the National Reading Panel in the early 200o’s.
We should also fund state-wide screening and monitoring systems like the Dynamic Indicators of Basic Early Literacy Skills (DIBELS) to monitor and intervene to support students as they learn to read. Students who demonstrate persistent problems in these five key elements should be screened more careful as potential dyslexia candidates.
Felipe G. Alvarez 3 years ago3 years ago
Unfortunately, the school district that my son attends diminishes the importance of implementing programs for children with reading and writing disabilities.
Emma Johnson 3 years ago3 years ago
That’s great news. Thanks to Gov. Gavin Newsom to increase dyslexia screenings, services for California students and $4 million investment will help improve dyslexia services in schools like GGUSD. Thank you once again, Governor Newsom, you are awesome.
Stacey 3 years ago3 years ago
I am so glad that things are going in the right directions especially for students in the future but this is just a drop in the bucket. How will it be assured that students who are in upper elementary grades and beyond that have dyslexia now are being helped? The Orton-Gillingham intervention is essential but it is also essential that these students have access to the technology (electronic books, speech to text, text to speech) … Read More
I am so glad that things are going in the right directions especially for students in the future but this is just a drop in the bucket.
How will it be assured that students who are in upper elementary grades and beyond that have dyslexia now are being helped? The Orton-Gillingham intervention is essential but it is also essential that these students have access to the technology (electronic books, speech to text, text to speech) that will help them learn and they are taught how to use this technology. Training of all teachers and not just special education is also essential because dyslexic students are capable of not just accessing grade level material but being going beyond with accommodations.
How will the culture of schools be addressed so that when students are using accommodations that it is seen as removing barriers for dyslexic students and not cheating by teachers, students, and other parents? A conference, research, and screening are just scratching the surface; much more work than this will need to be done.
ERICA CHAPMAN 3 years ago3 years ago
I’m heartened!! I think the teacher training aspect cannot be under-sold!!
Mary Beth Kelley 3 years ago3 years ago
Both my sons were diagnosed at the UCSF Dyslexia Center in San Francisco. The public schools need to start screening in kindergarten and then early intervention with a Orton-Gillingham based reading method like Wilson Fundations. There is no upside to waiting. The neuroscience proves dyslexia is real and exists. About 40% had dyslexia and ADHD. These kids face a major uphill battle in school for 13 years. More needs to be done… Thank you Governor Newsom!!!
Judithanne Gollette 3 years ago3 years ago
THANK YOU, THANK YOU, THANK YOU from the millions of students warehoused in special education classes not able to receive the support they need due to teachers not having the knowledge to teach them.
Nicole 3 years ago3 years ago
Let’s see the checklists, resources, ways to help early educators and k teachers screen.
Gary Sanchez 3 years ago3 years ago
Cracking the Code: There has always been a battle between basic skills defects and grade-level core expectations. My hope is we can do both without sacrificing one for the other. But if we don’t take care of phonological awareness, phonics, and fluency then some students will likely continue to struggle.
Bo Loney 3 years ago3 years ago
Please add dysgraphia so another child will never hear “he/she just doesn’t want to write” again.